• TikToker Brittany Lagarde mentioned she threw out the marriage gown she had been saving for her daughter.
  • Lagarde says it is her method of grieving that she seemingly will not see her daughter, Sawyer, get married.
  • Sawyer, 8, has Sanfilippo Syndrome, a uncommon genetic illness that causes deadly mind injury.

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Brittany Lagarde dreamed of passing her marriage ceremony gown right down to her daughter in the future.

However in a now-viral TikTok video from March 4, Lagarde instructed her followers that she had thrown out her marriage ceremony gown as she seemingly will not see her daughter get married.

Within the video — which had over 9 million views on the time of writing — Lagarde mentioned her daughter, Sawyer, now 8, was recognized with Sanfilippo syndrome, a kind of childhood dementia, on the age of two.

The Nationwide Group for Uncommon Issues (NORD) describes Sanfilippo syndrome — or mucopolysaccaridosis kind III — as “a uncommon genetic situation that causes deadly mind injury.” There’s at present no treatment for Sanfilippo syndrome and people with the situation reside on common to the ages of 15 to 20, though loss of life can happen earlier than the age of 10, in keeping with NORD. The identical supply says therapy is “symptomatic and supportive” to assist handle youngsters’s high quality of life.

Brittany Lagarde’s TikTok about her daughter’s sickness went viral

“I threw my marriage ceremony gown away as we speak. I do know what you are pondering, ‘Why would you ever try this?'” Lagarde, who had 187, 600 followers on the time of writing, says within the video.

“We have saved the gown with intentions that perhaps our daughter would need to put on it sometime or hear about our big day or play dress-up with it. Sawyer would not even know what a marriage gown is,” she added. “My daughter has childhood Alzheimers and her life expectancy is mid to late teenagers. […] So, she’s by no means getting married, so what is the level of maintaining it?”

Talking to Insider, Lagarde mentioned she wanted to let go of the concept of ​​her daughter sporting her marriage ceremony gown.

“Letting that go was me having fun with the sensible expectations that I’ve together with her now and dwelling for the on a regular basis moments as a substitute of getting that cloud hanging over me that she will not get married,” she mentioned. “The marriage gown was a reminder of that.”

Lagarde instructed Insider she acquired married in 2011 sporting a beaded, strapless gown that she mentioned she discovered at a Wisconsin store. She added that the robe had been returned to the store after a special bride’s marriage ceremony was canceled. When Lagarde tried the gown on, she mentioned, it match like a glove.

Lagarde told Insider that she bought her wedding dress right off the rack.

Lagarde wore a beaded, strapless gown to her marriage ceremony.

Brittany Lagarde

After Lagarde shared the video, many TikTok customers left feedback — on the time of writing, there have been 7,408 feedback on the submit — with some praising her for being sincere about what she was going by means of. Others requested why she did not donate her marriage ceremony gown.

Lagarde posted a follow-up TikTok video on March 5 in response, and mentioned that on the time she did not find out about organizations like The Angel Robe Program, which accepts outdated marriage ceremony attire to make burial clothes for infants who died. Lagarde’s follow-up video had over 260,000 views on the time of writing.

Lagarde instructed Insider she would not remorse her choice to do away with her marriage ceremony gown.

“I used to be within the headspace of throwing it away as a result of I saved it with the expectation that [Sawyer] would get married in it in the future, and that wasn’t the truth,” she mentioned. “I do not remorse throwing out the gown as a result of I really feel like that was what was greatest for my grieving course of and my expectations.”

Sawyer’s analysis modified the household’s lives

Lagarde instructed Insider that after Sawyer was recognized, she and her husband did blood exams and discovered they each carry the gene that causes Sanfilippo syndrome. In keeping with Mount Sinai, the kids of oldsters who each carry this gene have a one in 4 likelihood of getting Sanfilippo syndrome.

Lagarde mentioned she and her husband discovered from Sawyer’s analysis whereas they have been anticipating their second little one, a boy named Zion, who was born in 2016. Zion would not have Sanfilippo syndrome, however he was recognized with autism when he was 4, Lagarde mentioned .

Brittany Lagarde and her husband share TK-year-old Zion and eight-year-old Sawyer.

Brittany Lagarde and her husband share two youngsters: Zion, 5, and Sawyer, 8.

Brittany Lagarde

Lagarde mentioned her daughter nonetheless had her speech and loads of her abilities on the time of her analysis, however that modified when she turned 5.

“She misplaced her speech, and that is when loads of the mind injury began,” she added. “She has the cognitive means of perhaps a 12-month-old, and she or he’s 8. She will’t talk with us what she needs or wants.” In keeping with NORD, youngsters with Sanfilippo syndrome usually lose their speech and different mental features in addition to their motor features.

Lagarde is targeted on making each second with Sawyer rely

Lagarde mentioned she plans to proceed sharing what on a regular basis life with Sawyer appears to be like like as a result of she desires to normalize grieving.

“I need to give folks a secure place to know that it is OK that typically life does suck,” she mentioned. “I do not know what Sawyer’s future goes to appear to be. I do know it is going to finish, however I can not take into consideration that. I do know that it’ll be OK, and that is why letting my grief out has been probably the most useful factor for me.”

Lagarde mentioned she’s persevering with to deal with giving Sawyer one of the best life doable proper now. Since Sawyer’s analysis, Lagarde mentioned she and her household have taken Sawyer to Disney World and traveled all around the nation together with her.

“Having the ability to grieve her, but in addition make life particular together with her, make reminiscences together with her, I believe is what’s helped me go on,” she mentioned. “We need to make certain each second counts.”


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